Access Advocate for Clinical Research Participation

Objective:

This program will support implementation and evaluation of a Parkinson’s disease (PD) focused Access Advocate model designed to increase inclusive research participation. Funding will support Access Advocates at clinical sites to build practical, relationship based pathways to improving representative research enrollment and retention.

MJFF will prioritize proposals that:

Demonstrate strong PD study volume, including interventional clinical trials, and readiness to support study referrals.

Establish well defined Access Advocate role with appropriate training and supervision.

Implement repeatable workflows for identifying potential participants, assessing barriers, connecting people to resources and follow-up.

Include a feasible plan to track recruitment, retention, and barrier related metrics and site-relevant health system outcomes.

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